Hi everyone. Sorry this didn't get updated quicker, grandpa Tim agreed to help Jillian keep everyone up to date and I dropped the ball for a Couple days.  Well here goes!!
Monday the 19th at 11:04 am Kellen Cole Mort enter this great big world, Jillian got to see him for a quick moment and he was rushed off to the NICU.
After she spent a couple hours in recovery she then asked them to wheel her down in her bed to meet him and take some pictures.  She fell so in love the moment she saw him.
Kellen is doing very well. He is on a ventilator to help with his lungs and  is also on different tubes and medications.
Jillian spends most of her time with him and she over worked her body, so today has been a little harder on her.She is in pain from not enough rest and walking around so much.  She is so in love with her son. She got to change his diaper last night and also give him a little milk to swab in his mouth. He enjoyed that. He holds her finger and smiles when she talks to him. Today he opened his eyes for her. A moment I will never forget.

I just thought we would give everyone a little update so far. There will be more to updates throughout the week. Thank you everyone for the support and prayers.

Tomorrow is the big day of my baby's arrival! I'm am so excited and have been waiting for this day! I haven't got nervous yet, but it may hit me tomorrow morning. I know he will be in great hands with these doctors here.

I've had a great weekend with my dad here. Did a lot of different things to pass the time by. Today we got tickets to the Broncos game from Ronald McDonald House. That was alot of fun going to and couldn't of spent it with a better person! Such a good time the day before my sons arrival. We are just about to go pick up my mom from the airport. I am more then excited to see her. It's been about 2 weeks since I've last seen her. 

I just want to thank everyone who has supported me through all of this! You have all been so wonderful and it really has helped me out so much! All the prayers and thoughts mean so much to me! Such wonderful  family,friends, and community!! Please keep us in your prayers! 

Someone will be updating my page later tomorrow. 

Thanks again,

Jillian

As I left off last week, I said I would update after my doctor appointments this week.

I had my 3 doctor appointments yesterday. My first one was an ultra sound to measure how he is doing. The doctor told me he was measuring quite a bit smaller then he should be for how far along I am. He is in the 7th percentile. He weighs 5.1 pounds. He should be weighing around 5.5 pounds by delivery. I'm hoping he puts on a pound or so which could still happen. They spent a lot of time measuring the right lung and making calculations of how big it is. The doctor showed me where the lung should be and where everything should be placed if he didn't have this hole with everything shifting places. His heart is located on the right side which is not giving the lungs room to develop correctly. His left lung is still just a sliver and can't really see it. His right lung is still very small. I am praying for him to be able to take his first breath without the machines. 

After my ultra sound I then met with the cardiologist to measure and get pictures of his heart. They were making sure there was not a big change since the last time they measured and checked everything. One thing they were concerned about was his aorta. They wanted to make sure its open enough to get the baby blood flow to the brain and rest of the body. The cardiologist said it looks open enough so she didn't think he would be needing that surgery right after birth.  He has two heart defects that they will be performing surgery on after his CDH surgery.  She explained to me that we wouldn't know if he needed the ecmo machine until after birth. That machine would be working for his heart and lungs so he didn't have to do it by himself. I pray everyday that he will not be needing this machine and he is strong enough to do it by himself! They will connect a ventilator to help him breath right after birth. 

I got a tour of the CICU and the NICU where he will be going directly after birth. She showed me the machines he will be going on as far as which ones she knew he would be needing. They will go further into that with me when it's time. I got to see where he will be living and meet some of the staff. I did get great news that I will be able to be by his side 24 hours and I will be able to touch him. I was very concerned about not being able to touch him, since I know I can't hold him for awhile. She told me I was able to and that made me very happy. I am not sure if I get to see him right after delivery due to his conditions and me having a c section but, my parents will get to be by his side directly after birth until I am able to see him. I will be getting a tour this week of where I will be delivering him. It's a newer unit of the hospital so it wasn't open for the public to view yet. They told us that it is very nice so I am excited to see.

I then went to have my NST testing that I have twice a week. He did very well with that so I was able to leave. 

I had a great time with my mom while she was here. Made the days go by so much quicker. Today has been a very hard day on me seeing her leave. She was able to spend 5 days with me. Now back to keeping myself busy and my mind on other things while I wait for his arrival. My dad will be here the end of next week until after the baby is born. My mom will also be back before delivery.  I've found keeping myself busy makes the days go by so much quicker. Sometimes it's very hard to find things to do to keep me busy so I keep my mind off the waiting.

I want to thank everyone for all the support you have given me. The hope and prayers keep me going!! I truly am blessed to have such great and caring people in my life. As I will continue to take things day by day as this journey has only begun, but I have so much hope for my baby boy. I know he is a fighter and is going to be so strong and make it through all of this so one day he can tell everyone his story.  Please keep my baby in your prayers!!

Thanks again!!

Jillian

I thought I would give everyone a quick update since last week.
Ive now been in Colorado for just about 2 weeks. It was a very big adjustment at first, but I am now starting to get a little more familiar with things. I have doctor appointments twice a week. I have NST's twice a week, which is fetal non stress tests. This test involves attaching 2 belts around my stomach to measure the fetal heart rate and the baby's movement. I lay they for 20 minutes while everything is being monitored. They also do a ultra sound checking the placenta and the amniotic fluid to make sure everything is going well. I then meet with an OBGYN doctor just like any other pregnant female to go over things thoughout the week. This week they had me a little scared because they thought I might possibly have a blood clot in my lungs. The doctor set me up to do a CT scan, which I was very nervous about because I didn't want my baby to have radiation. After about a 20 minute talk with the radiologist he reassured me this test would be ok and not hurt the baby. The baby would get very little radiation. Off I went to do my scan and then waited patiently for the results. They said everything looked good except my esophagus had something wrong. I don't remember the doctors name of it. Pretty much to sum it up in non doctors terms its why I get heart burn so much worse. I've known about this for a couple years. Nothing to be to worried about.  I've had a good week so far! Starting to meet a few people in the house which is nice. Other then that spending most of the time in my room or at the hospital.  I am very excited to see my mom tonight, she came to stay for a few days! It's been very lonely and I'm sure my mom and dad are about to go nuts with the 25 phone calls a day! I will update again at the beginning of next week when I have my 2 big appointments checking the baby's heart and growth. I just want to thank everyone for their support and prayers, it has meant so much to me! Taking things day by day as of now and he will be here in just a little over 2 weeks! 

Jillian

I have decided to start a blog for people to keep updated.
As you may or may not know what is exactly going on, I will give you a little update.

I was very excited at my 19 week appointment to find out what I was having. I went in for my normal OB check up and to hear him say today is the day you can find out the sex of the baby. I was so excited words couldn't explain. I then went across the hall and waited for my anatomy scan and to find out the sex of the baby. She then told me I was having a baby boy! I was so excited, as she kept scanning and taking pictures of parts of the body it seemed like it was taking a very long time and she kept going over the same part again and again. She then told me to go back across the hall to meet with my doctor. I thought it was kind of odd because my doctor said after the ultrasound he would see me back in 4 weeks. As I went in to the office very nervous and wondering why i had to come back. The doctor then came in to explain my baby had what was called CDH. Congenital Diaphramatic Hernia. I had no idea what that was, as he then told me I probably had never even heard of this before. He explained that CDH was a congenital birth defect caused by a hole in the diaphram. This hole  did not close which lets parts of the stomach into the chest. Those organs press against the lungs and prevent proper development of the lungs. My baby had a hole on the left side of his diaphram. I was speechless and felt so confused and sad but still had so many questions running through my mind as to why? He explained to me that there is no cause for this and it was nothing I did or could have done to prevent this from happening.  He then told me this baby had to have special care from here on out. I would most likely be going to Billings for my further appointments. He explained everything to me as best as he could and asked if I had any questions. I had so many questions to ask but I was so speechless at the time. He told me the doctor from billings would be contacting me in the next couple days. As I walked out of office so confused and in tears just wondering why or how? Billings then called me right away saying they needed me to be there the
next day for a follow up appointment and this was a very serious condition. I hung up the phone and cried. I then called my family to explain the condition of my baby but it was all so new to me so I then did a lot of researching. We left for Billings that night.

As the next day approached I was waiting for my appointment so confused. They took me back to do a very long ultrasound that was like an hour or longer. When she was finished the Maternal Fetal Medicine doctor had come in to tell me all about what was happening. I then went to meet with a genetics counselor to talk. They did a amnio test which checks the baby's genetics. It's a small needle inserted into my stomach that takes the baby's fluid to check his genetics. They then told me they would call me in about 2 weeks with the results. They explained my baby would most likely be delivered at the Children's Hospital or I could choose a hospital for delivery that had what he needed at the time of birth.

It had been 2 weeks and I had finally got the phone call with the results of the amnio test. She told me his genetics looked great. I was so relieved to hear that news! I then had to call my family to tell them some things were looking up. My next appointment in billings a few weeks later I had found out the baby also had a hole in his heart and I would need to also see a cardiologist. Then again my heart dropped and I was so upset to hear my poor baby had to go through all of these horrible things. I then met with the cardiologist and he did his fetal echo scan and explained the correct terminology of what he thought the baby had for heart defects. He said he had 2 heart defects. As I left there I was so lost and confused about all of this. I was so sad.

I finally made my choice as to where I wanted my baby to be born. I choose the Children's Hospital of Colorado. Something in me felt like that was the right place to go. I made a trip to visit and do more testing around 26 weeks. I had a very long day of appointments. From MRI to fetal echo to ultra sound. I then had a meeting with all the doctors and surgeons. We went over all my testing and what was all going to happen. After meeting with  all the doctors and surgeons I knew this was the place for  delivery. I left very reassured that he would have a good outcome.

I had further monitoring in Billings until I was ready to relocate to Colorado.

The time came for me to pack up and say goodbye for awhile . It was very hard to leave my family, friends, and dogs. I knew I would do anything for this baby boy. 

The day had come to have another long day of testing at the Children's Hospital. I started the morning off with a very long MRI which looks at the baby's lung volume. It was very uncomfortable being in that machine for so long without moving, but what keeps me going is knowing I am doing it for my baby. I then had a ultra sound to measure how big he is and all the parts of his body. He was measuring a little smaller then he should weighing 4.8 pounds. From there I went to do a fetal heart echo, which a cardiologist ultra sounds the heart for about 2 hours getting all the measurements they need. After all my testing was complete I waited for the doctors to go over it and come out to get me to meet with them again. The time had finally come to meet them all again and go over all the images and everything I went through throughout the day. Each doctor had explained how the baby's development was and the plan for delivery. The doctors told me from the last time I was here that it has gotten more severe. His left lung is only a sliver and his right lung didn't develop very big due to not having enough room. As they told me that I broke down. Hearing it has gotten more severe was so heartbreaking. They told me they would do everything they can. I left there very emotional. I had no feeling, I felt so empty inside and there is nothing I can do to change this except pray. Everything will need to be done after delivery. I pray so often that my baby is a strong little boy and he can fight through all of this and be a survivor of all of this. This has been the hardest experience I have gone through in life. 

I have appointments about twice a week for monitoring until delivery. We decided c section was my delivery plan. 

I will try and keep everyone updated from time to time. 
Please keep us in your prayers!! 

Jillian