Wednesday, November 21, 2012

Hi everyone. Sorry this didn't get updated quicker, grandpa Tim agreed to help Jillian keep everyone up to date and I dropped the ball for a Couple days.  Well here goes!!
Monday the 19th at 11:04 am Kellen Cole Mort enter this great big world, Jillian got to see him for a quick moment and he was rushed off to the NICU.
After she spent a couple hours in recovery she then asked them to wheel her down in her bed to meet him and take some pictures.  She fell so in love the moment she saw him.
Kellen is doing very well. He is on a ventilator to help with his lungs and  is also on different tubes and medications.
Jillian spends most of her time with him and she over worked her body, so today has been a little harder on her.She is in pain from not enough rest and walking around so much.  She is so in love with her son. She got to change his diaper last night and also give him a little milk to swab in his mouth. He enjoyed that. He holds her finger and smiles when she talks to him. Today he opened his eyes for her. A moment I will never forget.

I just thought we would give everyone a little update so far. There will be more to updates throughout the week. Thank you everyone for the support and prayers.

Sunday, November 18, 2012

Tomorrow is the big day of my baby's arrival! I'm am so excited and have been waiting for this day! I haven't got nervous yet, but it may hit me tomorrow morning. I know he will be in great hands with these doctors here.
I've had a great weekend with my dad here. Did a lot of different things to pass the time by. Today we got tickets to the Broncos game from Ronald McDonald House. That was alot of fun going to and couldn't of spent it with a better person! Such a good time the day before my sons arrival. We are just about to go pick up my mom from the airport. I am more then excited to see her. It's been about 2 weeks since I've last seen her. 

I just want to thank everyone who has supported me through all of this! You have all been so wonderful and it really has helped me out so much! All the prayers and thoughts mean so much to me! Such wonderful  family,friends, and community!! Please keep us in your prayers! 

Someone will be updating my page later tomorrow. 

Thanks again,
Jillian

Tuesday, November 6, 2012

As I left off last week, I said I would update after my doctor appointments this week.
I had my 3 doctor appointments yesterday. My first one was an ultra sound to measure how he is doing. The doctor told me he was measuring quite a bit smaller then he should be for how far along I am. He is in the 7th percentile. He weighs 5.1 pounds. He should be weighing around 5.5 pounds by delivery. I'm hoping he puts on a pound or so which could still happen. They spent a lot of time measuring the right lung and making calculations of how big it is. The doctor showed me where the lung should be and where everything should be placed if he didn't have this hole with everything shifting places. His heart is located on the right side which is not giving the lungs room to develop correctly. His left lung is still just a sliver and can't really see it. His right lung is still very small. I am praying for him to be able to take his first breath without the machines. 

After my ultra sound I then met with the cardiologist to measure and get pictures of his heart. They were making sure there was not a big change since the last time they measured and checked everything. One thing they were concerned about was his aorta. They wanted to make sure its open enough to get the baby blood flow to the brain and rest of the body. The cardiologist said it looks open enough so she didn't think he would be needing that surgery right after birth.  He has two heart defects that they will be performing surgery on after his CDH surgery.  She explained to me that we wouldn't know if he needed the ecmo machine until after birth. That machine would be working for his heart and lungs so he didn't have to do it by himself. I pray everyday that he will not be needing this machine and he is strong enough to do it by himself! They will connect a ventilator to help him breath right after birth. 

I got a tour of the CICU and the NICU where he will be going directly after birth. She showed me the machines he will be going on as far as which ones she knew he would be needing. They will go further into that with me when it's time. I got to see where he will be living and meet some of the staff. I did get great news that I will be able to be by his side 24 hours and I will be able to touch him. I was very concerned about not being able to touch him, since I know I can't hold him for awhile. She told me I was able to and that made me very happy. I am not sure if I get to see him right after delivery due to his conditions and me having a c section but, my parents will get to be by his side directly after birth until I am able to see him. I will be getting a tour this week of where I will be delivering him. It's a newer unit of the hospital so it wasn't open for the public to view yet. They told us that it is very nice so I am excited to see.

I then went to have my NST testing that I have twice a week. He did very well with that so I was able to leave. 

I had a great time with my mom while she was here. Made the days go by so much quicker. Today has been a very hard day on me seeing her leave. She was able to spend 5 days with me. Now back to keeping myself busy and my mind on other things while I wait for his arrival. My dad will be here the end of next week until after the baby is born. My mom will also be back before delivery.  I've found keeping myself busy makes the days go by so much quicker. Sometimes it's very hard to find things to do to keep me busy so I keep my mind off the waiting.

I want to thank everyone for all the support you have given me. The hope and prayers keep me going!! I truly am blessed to have such great and caring people in my life. As I will continue to take things day by day as this journey has only begun, but I have so much hope for my baby boy. I know he is a fighter and is going to be so strong and make it through all of this so one day he can tell everyone his story.  Please keep my baby in your prayers!!

Thanks again!!
Jillian






Thursday, November 1, 2012

I thought I would give everyone a quick update since last week.
Ive now been in Colorado for just about 2 weeks. It was a very big adjustment at first, but I am now starting to get a little more familiar with things. I have doctor appointments twice a week. I have NST's twice a week, which is fetal non stress tests. This test involves attaching 2 belts around my stomach to measure the fetal heart rate and the baby's movement. I lay they for 20 minutes while everything is being monitored. They also do a ultra sound checking the placenta and the amniotic fluid to make sure everything is going well. I then meet with an OBGYN doctor just like any other pregnant female to go over things thoughout the week. This week they had me a little scared because they thought I might possibly have a blood clot in my lungs. The doctor set me up to do a CT scan, which I was very nervous about because I didn't want my baby to have radiation. After about a 20 minute talk with the radiologist he reassured me this test would be ok and not hurt the baby. The baby would get very little radiation. Off I went to do my scan and then waited patiently for the results. They said everything looked good except my esophagus had something wrong. I don't remember the doctors name of it. Pretty much to sum it up in non doctors terms its why I get heart burn so much worse. I've known about this for a couple years. Nothing to be to worried about.  I've had a good week so far! Starting to meet a few people in the house which is nice. Other then that spending most of the time in my room or at the hospital.  I am very excited to see my mom tonight, she came to stay for a few days! It's been very lonely and I'm sure my mom and dad are about to go nuts with the 25 phone calls a day! I will update again at the beginning of next week when I have my 2 big appointments checking the baby's heart and growth. I just want to thank everyone for their support and prayers, it has meant so much to me! Taking things day by day as of now and he will be here in just a little over 2 weeks! 

Jillian